European Union counting Lyme disease
The Union prevention, preparedness and response plan plans counting of zoonoses including Lyme disease.
It implements a regulation (law with mandatory value).
https://health.ec.europa.eu/health-security-and-infectious-diseases/preparedness-and-response-planning_en#the-union-prevention-preparedness-and-response-plan
This text refers to the webinar by DG SANTE(health)
https://health.ec.europa.eu/events/union-prevention-preparedness-and-response-plan-2025-02-28_en
Union prevention, preparedness and response plan
Promoting effective and coordinated response to cross-border threats to health, health crises and pandemics at EU level
Friday 28 February 2025, 10:00 - 11:30 (CET)
Spoken version
EuroLyme has a follow up comment regarding
a parliamentary written question made last year by Kathleen Funchion and Lynn Boylan :
How does the Commission propose to obtain realistic diagnosis and an accurate counting of Lyme disease patients ?
The answer of
a parliamentary written question made 3 years ago by Frédérique Ries
refers to a counting of Lyme Neuroborreliosis cases.
In 2023, less than 2000 cases were reported.
But already the European Parliament resolution of 15 November 2018 on Lyme disease
motivates that Lyme disease is still underdiagnosed and appropriate diagnostic tests are absent.
In the regulation on serious cross-border threats to health find
as first subject of the scope
threats of biological origin, consisting of:
communicable diseases, including those of zoonotic origin;
Epidemiological surveillance
including those of zoonotic origin;
The EU reference laboratories shall be responsible for
reference diagnostics, including test protocols.
It is unfortunate that 6 years after the 2018 EP resolution,
none of the research institutions and advisors who fit EU funding rules proposed an evaluation of blood tests.
EuroLyme proposes a research project on its
EuroLyme EU Petition on the Reliability of blood tests.
Written version
EuroLyme represents European groups for Lyme disease.
https://www.eurolyme.eu/
Follow up comment regarding
the parliamentary written question E-001998/2024 by Kathleen Funchion and Lynn Boylan :
Lyme disease
https://www.europarl.europa.eu/doceo/document/E-10-2024-001998_EN.html
How does the Commission propose to obtain realistic diagnosis and an accurate counting of Lyme disease patients ?
The answer of
the parliamentary written question E-000482/2022 by Frédérique Ries
Compliance by Member States with the obligation to report cases of Lyme disease
https://www.europarl.europa.eu/doceo/document/E-9-2022-000482_EN.html
https://www.europarl.europa.eu/doceo/document/E-9-2022-000482-ASW_EN.html
refers to
Survaillance Atlas of Infectious Diseases
https://atlas.ecdc.europa.eu/public/index.aspx?Dataset=27&HealthTopic=76
It makes counting of Lyme Neuroborreliosis cases.
In 2023, less than 2000 cases were reported.
European Parliament resolution of 15 November 2018 on Lyme disease (borreliosis) (2018/2774 (RSP)).
https://www.europarl.europa.eu/doceo/document/TA-8-2018-0465_EN.html
This resolution motivates :
O whereas, although well known to medical science, Lyme disease is still underdiagnosed, in particular because of the difficulties encountered in the detection of symptoms and the absence of appropriate diagnostic tests;
P whereas the screening tests used for Lyme disease are not always able to provide accurate results, one such example being the Elisa test which only detects one infection at a time;
Regulation (EU) 2022/2371 on serious cross-border threats to health
http://data.europa.eu/eli/reg/2022/2371/oj
CHAPTER I GENERAL PROVISIONS
Article 2 Scope
1. This Regulation shall apply to public health measures in relation to the following categories of serious cross-border threats to health:
(a) threats of biological origin, consisting of:
(i) communicable diseases, including those of zoonotic origin;
CHAPTER III EPIDEMIOLOGICAL SURVEILLANCE, EU REFERENCE LABORATORIES AND AD HOC MONITORING
Article 13 Epidemiological surveillance
1. The network for the epidemiological surveillance of communicable diseases, including those of zoonotic origin, and related special health issues referred to in Article 2(1), points (a)(i) and (a)(ii), (‘the network for epidemiological surveillance’) shall ensure permanent communication between the Commission, the ECDC, and the competent authorities responsible at national level for epidemiological surveillance.
Article 15 EU reference laboratories
2. The EU reference laboratories shall be responsible for coordinating the network of national reference laboratories, in particular, in the following areas:
(a) reference diagnostics, including test protocols;
It is unfortunate that 6 years after the 2018 EP resolution,
none of the research institutions and advisors who fit EU funding rules proposed an evaluation of blood tests.
EuroLyme proposes a research project on its
EuroLyme EU Petition.
http://www.lymeplus.com
https://www.europarl.europa.eu/petitions/en/petition/content/0986%252F2023/html/Petition-No-0986%252F2023-by-John-Vandeput-%2528Belgian%2529%252C-on-behalf-of-EuroLyme%252C-on-reliable-blood-tests-for-Lyme-disease